2010conference


	Association for Glycogen Storage Disease 32nd Annual Conference


	The 2010 AGSD Conference is being held on Friday and Saturday, October 8th & 9th in Orlando, Florida


	~~~~~~AGSD CONFERENCE SCHEDULE~~~~~~ (tentative)


	_________________Friday, October 8th_________________________________________

1:00 pm	AGSD Board of Directors Meeting
5:00 pm to 7:00 pm	Pool Party and Barbecue
7:00 pm	Welcome and Keynote Address - Silent Auction
8:00 pm	Talent Show
9:30 pm	Possible showing of the movie, “Extraordinary Measures”


	_________________Saturday, October 9th______________________________________

8:00 am	Breakfast Buffet
9:00 am	AGSD General Meeting
9:45 am to 12:00 pm	“The Future is Now” Talks of General Interest to Group
	- Gene Therapy Trial for GSD I
	- Gene Therapy Trial for GSD II (Dr. Barry Byrne)
	- Non-viral Vector Research (Dr. Dwight Koeberl presenting Glygenix-sponsored research)
	- Extended Release Cornstarch Update
12:00 pm	Lunch - Silent Auction ends

1:00 pm to 3:00 pm	Breakout 1 - Grouped by Disease Types
	(Presentation of Guidelines and Q & A; Adults with disease will also be included for each group)
	- Type Ia (Dr. Wendy Chung, Dr. Joseph Wolfsdorf)
	- Type Ib (Dr. Steven Lobritto, Dr. David Dale, Heather Edwards)
	- Type II (Dr. Barry Byrne, Dr. Priya Kishnani)
	- Type III (Dr. Pamela Arn, Dr. Dwight Koeberl, Kelly Reading)
	- Types V and VII (Dr. Ronald Haller, ...)
	- Types 0, VI, IX, and un-typed (Dr. David Weinstein)

3:00 pm	Snack break
3:30 pm to 4:30 pm	Breakout 2 - Grouped by Age
	- GSD Management in Infants and Toddlers (Panel with parents, Lori Overland, and SAB Members)
	- GSD Management in School-Aged Children (Panel with parents and SAB Members
	- GSD Issues for Teenagers (Run by Grant Tremelling, Andrew O’Toole, Matt James, and SAB Member)
	- Adults with GSD (Discuss work, pregnancies, etc.)
	- Group for Siblings without GSD (Run by Lisa Merlo)

4:30 pm	The “Magic Mile” - AGSD Fun Run/Walk
5:30 pm	Transportation leaves for Gatorland


	6:00 pm


	Dinner and family activity at:


	Corporate Sponsors for the conference are ... Platinum Sponsors - donated $5,ooo Platinum Sponsors - donated $5,ooo Gold Sponsors - donated $2,ooo Silver Sponsor - donated $5oo


	At this year’s Annual Conference we will have three events:


	Talent Show Share your hidden talents with us! Do you sing or dance or tell jokes or play an instrument or read poetry or just act silly or ... whatever?


	Silent Auction


	AGSD Fun Run/Walk

The site for our conference is the

The special AGSD Conference room rate is $92.00 for a standard guest room with two double beds. [plus a reduced resort fee of $5.00/night per room]

REMEMBER, HOTEL RESERVATIONS ARE YOUR RESPONSIBILITY!
DEADLINE FOR THE AGSD CONFERENCE RATE IS SEPTEMBER 8th.



	URL: www.agsdus.org Website last updated on September 1, 2010. © 2001 - 2010, The Association for Glycogen Storage Disease. All rights reserved. Disclaimer and Privacy Statement Contact Us!